{"id":746,"date":"2021-10-24T23:54:43","date_gmt":"2021-10-24T23:54:43","guid":{"rendered":"http:\/\/adamlea.eu\/index.php\/home-deutsch\/"},"modified":"2025-04-15T12:37:24","modified_gmt":"2025-04-15T12:37:24","slug":"home-deutsch","status":"publish","type":"page","link":"https:\/\/adamlea.eu\/","title":{"rendered":"Home – Deutsch"},"content":{"rendered":"

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Story of<\/h1><\/div>
Adam & Lea vs Sanfilippo<\/div><\/div>
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Two children. One fatal disease. A family’s fight to save them.<\/span><\/h2>\n

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How We're Doing \u2014 And the Latest News<\/h2><\/div>
See how we’re doing and learn more about our efforts to support research and raise awareness. Visit the websites of our organisations: Fundacja Sanfilippo<\/a>, Sanfilippo Initiative<\/a> and the International Sanfilippo Syndrome Alliance<\/a>.<\/div><\/div>[vc_row_inner][vc_column_inner][vc_raw_html]JTVCbXktaW5zdGFncmFtLWZlZWQlMjAlMjB1c2VyX2lkJTNEJTIyODk1MjM1Mzg5MTQ2NzM0NCUyMiUyMHNraW5faWQlM0QlMjI3MjklMjIlMjBmZWVkc19wZXJfcGFnZSUzRCUyMjEyJTIyJTIwY2FwdGlvbl93b3JkcyUzRCUyMjI1JTIyJTIwY2FjaGVfdW5pdCUzRCUyMjElMjIlMjBjYWNoZV9kdXJhdGlvbiUzRCUyMmhvdXJzJTIyJTIwbG9hZF9tb3JlJTNEJTIyMCUyMiUyMCUyMGxpbmtzX25ld190YWIlM0QlMjIxJTIyJTIwJTIwc2hvd19zdG9yaWVzJTNEJTIyMCUyMiUyMCU1RA==[\/vc_raw_html][\/vc_column_inner][\/vc_row_inner][\/vc_column][\/vc_row][vc_row full_width=”stretch_row” equal_height=”yes” content_placement=”middle” css=”.vc_custom_1570460426457{padding-top: 80px !important;padding-bottom: 30px !important;background-color: #f5eff0 !important;}” el_id=”about”][vc_column css_animation=”fadeInLeft” offset=”vc_col-lg-offset-0 vc_col-lg-6 vc_col-md-offset-0 vc_col-md-6 vc_col-sm-offset-0 vc_col-xs-12″ css=”.vc_custom_1570469536499{padding-bottom: 70px !important;}”]
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Our story<\/h2><\/div>
This story is about us: \u00a0Adam and Lea, siblings connected in struggle for life against MPSIII also known as Sanfilippo disease.<\/div><\/div>[vc_column_text css=””]<\/p>\n

Hello, my name is Adam, and this is my younger sister, Lea.<\/strong>
We haven\u2019t been in this world very long, but life has already presented us with a significant challenge: Sanfilippo Syndrome<\/strong>.<\/p>\n

Due to a rare genetic mutation, each of us had a 25% chance of inheriting this condition. Against the odds, we both did<\/strong>. It\u2019s not easy news for any family to receive, but our parents took immediate action, researching everything they could \u2014 and they discovered that there is hope<\/strong>.<\/p>\n

You can read more about potential treatments and research elsewhere on this website.
Here, we simply want to introduce ourselves. While we live with a serious condition, we are also adorable kids full of joy, curiosity, and love \u2014 and we hope you’ll get to know us a little better.<\/p>\n

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